Telemedicine Letters to Governors

NORD asks Governors to adjust their state licensure requirements to better facilitate telemedicine across state lines during the COVID-19 crisis.

State Policy Report Card

In 2015, NORD launched its State Report Card project with a goal of evaluating how effectively states are serving people with rare diseases. It is important to note, however, that these issues are not exhaustive. The issues contained herein touch on several critical and relevant policy areas at the state level, but with each issue included, there are still many others that are capable of impacting the lives of rare disease patients.

State Ambassador Program

This program was developed by NORD for volunteer state ambassadors to establish and build a strong grassroots network of rare disease advocates to help drive advocacy for increasing awareness of rare diseases and the challenges faced by individuals and their families. Ambassadors help achieve these goals by leading advocacy efforts in their state and local communities. They do this by building a strong grassroots network of rare disease advocates within their state and collaborating with other advocates on advocacy, awareness and educational outreach programs.